Sunday, February 26, 2017

February 26, 2017

Another month has quickly gone by. Can you believe it? We've had some pretty great things happen this month and I thought I would take this time to share with all of you.

When the news of Ben's diagnosis started to settle in, and God allowed Ben and I to truly believe that no matter what the outcome, everything will be okay and that God was with us, a huge weight was lifted from our shoulders. It was at this time that I prayed asking God to allow us to share our story and to use us to help others going through a difficult time. I wasn't sure what that would look like, but I was open for anything. It was shortly after that, that we were asked to speak in front of our church community, sharing our story and how we have felt God's faithfulness despite the valley we find ourselves in. I believe sharing helped Ben and I probably more than anyone. Being open and vulnerable with our community and church family was one of the best things we have been able to do on this journey so far. Ben and I soon saw the huge support system we have through our church. This is something that really means a lot to us! For those of you who are interested, here is the video of us sharing.


I also had the privilege of sharing at a woman's group shortly after sharing in front of our church community. It's funny, in our testimony I said, "there are times I smile, acknowledging God for what He has done"....  and there He was again, answering my prayer, having us speak His love for us in front of others. I get this incredible sense of "God with us" when things like this happen. A content, loving, peaceful feeling comes over me. Something I know only comes from God.


Today we went into church to a service which also struck a few cords for us. The topic of the service was, "If God is supposed to be good, loving, and sovereign, why is there so much brokenness? How can I put my faith in God when I experience so much pain? Why would God allow it? Where can we find comfort?" I cried though a lot of today's service. Not because I felt mad with God, but because this service seemed to reassure me of God's work in our life right now and that's a pretty emotional spot for me! Here is the link to the service below. I highly recommend listening to this service if you too are experiencing a rough time.


Here is the video we watched before the service: https://vimeo.com/71270296

Here is the service link: https://southridgechurch.ca/inspiration/#messages


This month for Ben has been full of a lot of tests and waiting. These tests have been done to determine whether he will 100% be going in for his liver resection. Basically, MRIs and CTs have been done to see if there has been any progression of cancer in Ben's liver. If there hasn't been any progression, the liver resection will be done. If they find any growth in the liver since January, (Ben has been off chemo since January) we will have to re-evaluate the situation and talk about next steps. Our biggest prayer right now is that this liver resection will take place. We will certainly share the results of these tests as soon as we get them ourselves! Last week Ben also started radiation. Ben will receive a total of 5 radiation treatments, consecutively. The radiation is being done on the tumour in the colon, to contain and minimize it. As of today Ben has completed 2 treatments, the last 3 to finish this week. Ben has tolerated these treatments fairly well. Nausea has been a big side effect. Thankfully there has been some medications Ben can take to help him get through the bouts nauseousness. So, February certainly has been a huge practice in patients for us. Some of these tests have been booked from the beginning of February and only took place this week, so you can imagine our eagerness to know what our next steps are! However, God has really allowed us to be patient and calm while we wait. It reminded me of the bible verse below. 

I am hoping by the end of this coming week or beginning of next week I can come back here and share some good news with you all. Thank you, as always, for the continuous prayer! We have AMAZING people in our lives!
       





Thursday, February 9, 2017

Next Steps for Ben and a HUGE Prayer Request!

February 9, 2017

Not even 2 weeks home from our dream vacation and we've had a lot on our plate! Ben has had a procedure in Hamilton, 2 doctors appointments and many other appointments in the very near future.

Ben's first procedure was on February 3rd. This was his portal vein embolization procedure, which I mentioned in my last post. It's kind of a complicated thing to explain so I have attached a video here which explains it perfectly! (and saves me paragraphs of writing) Click on the link below.


The embolization procedure took place in Hamilton and was 3 hours long. Ben was awake from the entire thing. He spent the night in hospital and was discharged the next morning. He came home with some pain meds, which he rarely takes, and was feeling a bit tender and tired. Since then he has really been doing well and up and about. You'd never know looking at him! He occasionally does have some pain at the incision site and tenderness around the liver. Other than that I've been surprised at how well he has come around.
2nd doctors appointment today. He smiled for me :)

Today, February 9th, we had 2 doctors appointments. We met with Ben's medical oncologist and his radiation oncologist. We learned that Ben will have a CT scan on Monday (Feb 13th) and start radiation for the tumour in the colon starting February 21st. He will receive 5 days of radiation, Feb 21, 22, 23, 24 and 27th. Each treatment is only about 15 minutes long. This is to downsize the tumour in his colon while attending to the liver. We've been told the side effects shouldn't be as bad as chemotherapy and we pray he feels well for treatments!

Following radiation, Ben has an MRI and CT scans booked on his liver and surrounding areas to asses the cancer. Ben has been off chemo since January 4th so they want to see that the cancer hasn't grown since being off treatment. This is a HUGE step. If the cancer has not grown and stayed the same since his last treatment, we can proceed and Ben can go in for a liver resection. If the cancer has continued to grow since chemotherapy they will have to reassess things. Our biggest prayer right now is that the cancer in Ben's liver has not grown and that he will go in for this liver resection! We are asking our prayer warriors to really pray hard for this! If the scans come back good, a liver resection will likely happen the beginning of March. The resection will remove 75% of his liver, the most you can remove during a resection.

When the liver resection is complete, Ben will wait 4-6 weeks to undergo his 4th surgery since being diagnosed to remove the tumour in his colon and possibly reverse his ileostomy. Following this it sounds like he would receive a few more treatments of chemotherapy, but those details aren't totally firm yet. Ben has an appointment tomorrow, Feb 10th, to meet with the colon surgeon in Hamilton to learn more about this.

The next few months are really big for Ben. This has been the biggest news for us since June. We were been told back in June when Ben was originally diagnosed that he only had a 10% chance of qualifying for a liver resection and yet here we are planning the surgery! We've also been told that Ben is the first case presented to his medical oncologist as being a patient who has stage 4 colorectal cancer who did not qualify for surgery, and now does after receiving chemotherapy treatments. I can only fall to my knees, lift my hands and thank our God for His amazing work and this miraculous miracle. We keep listening to the song "Oceans" by Hillsong and the words are just so perfect,... "Spirit lead me where my trust is without boarders. Take me deeper than my feet could ever wander and my faith will be made stronger in the presence of my saviour". Trust without borders... "and I will call upon Your name... keep my eyes above the waves, I am Yours and You are mine"

Our wedding rings.
This picture reminded me of the vow we took to one another almost
 8 years now. Through sickness and health...
I continue to be in complete awe of God's work in our life. Having absolutely no control over this situation and giving everything to God has been a huge part of our journey so far. At times this is hard, and it can be trying but He has never disappointed us and He continues to work and show Himself to us. How loving is our God! I am also very thankful for the work God has done in our marriage. He has created one heck of a team between Ben and I. We couldn't do this without each other. I love you so much Ben!

We continue to thank everyone for your outpour of support and prayers! The hands of help with the girls, with meals, monetary donations, help with groceries, house cleaning, lawn care... the list goes on and on... to have friends, family and community rally around us and help us get through this time has been a true blessing and SO unbelievable. Thank you!!


Wednesday, February 1, 2017

Our Trip to DISNEY and Next Steps for Ben

February 1, 2017

We have just come back from a full 7 days in DISNEY! What a trip! This trip was gifted to us from some very generous people and we are so thankful and beyond blessed. The timing of the this trip was perfect. Ben had stopped chemo to prepare for some upcoming procedures so not being on chemo and being able to experience all of Disney certainly fell at a great time. With that being said, Ben did have his ups and downs during the trip but we rented Ben a scooter and it was the best decision we made. Disney is amazing with accommodating those in wheelchairs or motorized scooters and we were given what felt like VIP service during our entire trip. Ben's parents and my parent's travelled with us to help with the kids and we could have never done this trip without them! Thank you guys for everything!!!  I wanted to share some of our favourite pictures from our trip. We stayed at the Boardwalk Inn, which was exceptional. We visited each park, Magic Kingdom, Epcot, which was only a 5 minute walk from our hotel, Hollywood Studios and Animal Kingdom. Some of our favourite things were the Frozen Sing-a-Long- a hilarious show for the parents and a perfect sing-a-long for the kids, Turtle Talk with Crush, the Kilimanjaro Safari, the roller coasters including Mine Train, which Brooke braved through, Rock n' Roller coaster, Splash Mountain, and of course the Bibbity Bobbity experience for Brooke. 

This is a trip we will remember for the rest of our lives. It put smiles on our faces and we were able to spend some much needed quality time with family, something we've really needed! Now that we are home the chaos begins with Ben's upcoming appointments and procedures. Tomorrow Ben is already being admitted to hospital for an embolization procedure to prepare him for liver resection which will take place within 3-4 weeks. He will also be starting radiation treatments. So,  as we continue on this journey with cancer we look back on the pictures from this trip and smile feeling extremely blessed to be able to take this time together and blessed for the amazing people in our lives who got us there!


The family by the Tree of Life- Animal Kingdom

Tinkerbell!

Meeting Cinderella





Meeting Elsa and Anna!

A cool, rainy day in the Animal Kingdom, but we all still had a blast!


My dad's cousins, Jerry and Nikki, joined us in Hollywood Studios for an afternoon. They live in Orlando and my parents stayed with them. 
Brooke's Bibbity Bobbity experience!









Princess Brooke at the Lego store in Disney Springs


swimming at the Boardwalk Inn pool!